These resources and links have been provided by various NOCC volunteers, ovarian cancer patients, physicians, etc. The NOCC is not affiliated with these sites and cannot confirm the accuracy of any information contained on these sites. Any information obtained should be confirmed with your own physician. No endorsement of these organizations or their sites is made or implied.
The National Ovarian Cancer Coalition's national website
Ovarian Cancer Resource Guide for Women With Recurrent Disease This new informational
booklet is provided by the national office of the NOCC.
DFW Hereditary Breast and Ovarian Cancer Support Group This is a group formed in association with
FORCE (Facing Our Risk of Cancer Empowered). It is designed for patients (and their families) who have been tested positive for hereditary
breast and ovarian cancer (such as BRCA+). They will be meeting quarterly, sometimes in Dallas and sometimes in Ft Worth. For information
on upcoming meetings you can call Linda Robinson at 214-645-HOPE. You can also download an informational sheet by
clicking here.
Ovarian Cancer Stamp Petition There has been an ongoing effort to get an ovarian cancer stamp. Many
of you may have already signed a petition but apparently the request has to be re-submitted every year so if you haven't signed a stamp
petition this year please do so. You can print information and a petition here (in Adobe Acrobat format):
Ovarian Cancer Stamp Petition.
The Lance Armstrong Foundation puts out a free Survivorship Notebook to
help you organize and guide your cancer experience. The easy-to-carry,
three-ring binder contains information on physical, emotional and
practical survivorship topics, stories of cancer survivors talking about
experiences, survivorship tools to help you keep track of important
information, and sections for you to add your own records, notes,
pamphlets and information. Because the notebook is portable, you can
take it with you to healthcare appointments and other important
appointments. One of our volunteers, Dianne Blankenstein, attended the LAF conference
in 2006 and brought back information including the form to order this. You can
print yourself a pdf (Adobe Acrobat) version of the order form by clicking here on the Lance Armstrong
Foundation Survivorship Notebook Order Form. Just
complete and fax or mail it to them to get your notebook. This is an excellent resource for
all cancer survivors. Thanks, Dianne!
Texas Cancer Statistics and Information
Cancer Care - A national non-profit organization whose mission is to
provide free professional help to people with all cancers through counseling, education, information, and referral and
direct financial assistance. Phone: 212-712-8080 or 800-813-HOPE.
Shine Therapy - Cancer Care (see above) provides Shine Therapy - a non-profit organization dedicated to providing
massage therapy to assist the vital recovery and support the wellbeing of cancer patients. Cancer Care in Ft Worth and Shine Therapy
are collaborating to offer this at reduced or even possibly no charge to cancer patients in active treatment. For more information,
call Erin Wickware at 817-921-0653.
Teal We Meet Again - a site providing some wonderful products with
a portion of the proceeds going to ovarian cancer organizations, including the NOCC.
Bridge of Blessings - A non-profit organization which offers
temporary financial assistance to qualified individuals in the North Texas area who are undergoing treatment for breast and
ovarian cancers.
Lotsa Helping Hands - a site which provides free web service designed to help a loved
one in crisis with meals, rides, and other daily needs. It is done through a web community where family, friends, and other volunteers can pitch in with
the tasks necessary for life to run smoothly. The website was designed to provide a coordination of caregiving services and
is partnered with the NOCC on a national level.
Teal Ribbon Checks - a site where you can order checks
with the Teal Ribbon. These checks can be ordered with an optional free personal expression line
which will appear under "National Ovarian Cancer Coalition". These checks could make a great gift for
your friends and family for September's Ovarian Cancer Awareness month.
American Cancer Society - National Comprehensive Cancer Network Ovarian Cancer Treatment Guidelines for Patients
The How And Why Of Cancer Cells - from Emory University
Online petition to try to get an Ovarian Cancer Awareness postage stamp
Society of Gynecologic Oncologists - The SGO is a national medical specialty society of
physicians who are trained in the comprehensive management of women with malignancies of the reproductive tract. Its purpose is to
improve the care of women with gynecologic cancer by encouraging research, disseminating knowledge which will raise the
standards of practice in the prevention and treatment of gynecologic malignancies, and cooperating with other
organizations interested in women's health care, oncology, and related fields.
Gilda's Club
Ovarian Cancer National Alliance - The primary goal of this organization is
to establish a coordinated national effort to place ovarian cancer education, policy, and research issues prominently on the
agendas of national policy makers and women's health care leaders.
FORCE: Facing Our Risk of Cancer Empowered - An organization for women with
genetic forms of ovarian cancer. In addition to being an advocacy group for women concerned about hereditary breast and ovarian cancer, this organization has recently been involved in the
establishment of the nation's first peer-support helpline for women with a hereditary risk of developing breast and/or ovarian cancer. The toll-free line is staffed by volunteers who have undergone genetic counseling. The
number to call is 1-866-824-RISK (7475).
Women's Cancer Network - The WCN is an interactive website dedicated to informing women around the world
about gynecologic cancer. The goal is to assist women who have developed cancer, as well as their families, to understand more about the disease, learn
more about treatment options, and gain access to new or experimental therapies. The WCN was developed by the Gynecologic Cancer Foundation and CancerSource. Phone: 312-578-1439.
Cancer Care Services - a nonprofit social service agency providing financial, emotional, and social assistance to cancer patients and their families.
National Cancer institute - The NCI is a component of the National Institutes of Health, one of eight agencies
that compose the Public Health Service in the Department of Health and Human Services. The NCI coordinates the National Cancer Program which conducts and supports
research, training, health information dissemination, and other programs with respect to the cause, diagnosis, prevention, and treatment of cancer,
rehabilitation from cancer, and the continuing care of cancer patients and the families of cancer patients. Their website includes links to cancer
information and clinical trails.
Cancer.com - online Ovarian Cancer Awareness Center
Literature Recommended By Volunteers/survivors:
- Gilda's Disease: Sharing Personal Experience and a Medical Perspective on Ovarian
Cancer by Steven Piver
- It's Always Something by Gilda Radner
- No Time To Die: Living with Ovarian Cancer by Liz Tilberis
- Women's Bodies, Women's Wisdom by Christiane Northrup, M.D.
- The Wisdom of Menopause by Christiane Northrup, M.D.
- Conversations! A magazine put out by the International Ovarian Cancer Connection. Phone: 806-355-2565
or www.ovarian-news.org. The IOCC is an organization for the support of those fighting ovarian cancer and other related illnesses. It functions on the national and
international level to increase public and professional awareness and understanding of ovarian cancer and related illnesses, to advocate for increased research and funding for more
effective diagnostics and treatment, and to provide tips for coping with the side effects of ovarian cancer and its treatment. This is the only
national or international ovarian cancer organization which can provide multiple matches for women seeking to contact other ovarian cancer fighters
with similar circumstances, such as geographic region, unusual cell type or treatment, age or stage at diagnosis, side effects, family situation, etc.
- Cure A quarterly magazine published by Cancer Information Group. Phone: 800-210-CURE or
www.curetoday.com. This magazine combines the science and humanity of cancer for those who have to
deal with it on a daily basis. CURE provides scientific information in easy-to-understand language with equally
understandable illustrations.
- Heal This magazine is for the more than nine million cancer survivors in the United States who have made the cancer journey and the millions more who have made it
with them. It is the magazine that addresses becoming whole again after treatment ends - no matter the outcome or future prognosis. It is the how-to guide
for how to "be" after cancer treatment is over. Think of it as a support group that will arrive in your mailbox. Phone: 800-210-2873 or
www.healtoday.com.
